Date: 2017-07-24
Type of
information: Results
phase:
Announcement: results
Company: Boehringer Ingelheim (Germany)
Product:
Action
mechanism:
Disease: idiopathic pulmonary fibrosis (IPF)
Therapeutic
area: Lung diseases - Respiratory diseases - Rare diseases
Country:
Trial
details:
Latest
news:
- • On July 24, 2017, New results from a global survey supported by Boehringer Ingelheim reveal the emotional and practical challenges facing people with idiopathic pulmonary fibrosis. Patients are impacted by feelings of anxiety, fear, uncertainty and hopelessness, as well as a restriction in everyday activities. However, a range of both medical and non-medical support is available to help them cope with their disease.
- The survey uncovers patient concerns about the irreversible progression of their disease. Patients are especially worried over acute idiopathic pulmonary fibrosis exacerbations - a rapid deterioration of symptoms within days or weeks, which can significantly reduce chances of survival and lead to death within a few months. More than 150 patients across nine countries were interviewed. 61% of respondents report that they are worried (39%) or extremely worried (22%) about experiencing an acute IPF exacerbation.
- Patients also highlighted the impact of the physical limitations caused by the disease, the importance of knowing how long they will be able to be active and continue with their hobbies and accepting and learning how to live with the condition.
- Support for patients dealing with the challenge of idiopathic pulmonary fibrosis goes beyond drug therapy and can include supply of additional oxygen when needed and pulmonary rehabilitation programmes, including advice on the diet and exercise plan most appropriate to an individual patient’s disease and medication. Patients can benefit from speaking with their physician about the challenges they face, however further emotional and practical support can also be gained from the wider team of healthcare professionals, such as nursing support, social workers, psychologists and physiotherapists, as well as family, friends and patient support groups.
Is
general: Yes
